the journey

Wellness

Jordan in Scrubs The nurse walked right by Jordan. She looked around the waiting room curiously and then asked Jeanette where she was. Jeanette pointed to the vending machines where Jordan stood wearing her favorite pair of scrubs–the ones she wore for Halloween. Jordan thought it was hysterical. We are relieved that when she visits Children’s Hospital these days, she blends into the scenery because she’s in disguise, not because she is such a frequent visitor.

Read more...

Oblivious

She’s doing well, no new episodes. She will see her neurologist next week. The doctors don’t seem as concerned as us. That makes me antsy, because I don’t like waiting. But we’ll have real data to evaluate next week. In the meantime, Jordan is very content and feeling great. She even managed to use the seizure as a rationale to get out of cleaning her room.

Blame Writers

It’s Tolstoy’s fault. Or maybe Dickens. Shakespeare didn’t help either. I suppose if we’re really pointing fingers, you’d have to include the Greeks and all those cavemen who told stories by firelight. I thank them all for sometimes dashing my hope. Because we all know the stories. The stories have been told so many times that in our heads we jump ahead to the ending the minute we recognize the beginning.

Read more...

The Lovepug

The Lovepug Fewer words on the blog always means the same thing: progress. I must admit, I’m a little reticent to say much every tenth month of the year. It’s one of my favorite months, but for so many years it was a curse for Jordan. She beat that curse in 2007, and ever since we’ve been so happy not to spend time in hospitals or wringing our hands hoping she was okay.

Read more...

Annoyance

Non-Hyper Jordan The new drugs are supposed to settle her down, but she seems more hyper than ever. Maybe it has nothing to do with brain tumors or medications. Maybe it’s just a kid at age 11. She has a momentum that can wear you down. She’s always chattering. She’s always fidgeting. She’s always in the spot where you wish she wasn’t. Sometimes, Jeanette and I sound like the crankiest parents on planet earth.

Read more...