It’s been a frustrating day. As much as I love Children’s Hospital, and I do love them, they are a case study in dysfunctional operations. If not for the unbelievable talent of the doctors and nurses, I’d consider moving Jordan’s case somewhere else. But the doctors and nurses are fantastic and I can’t imagine trusting her care to anyone else. I took the day off to be with Jordan, but the hospital implemented a new policy that only one parent can be with the patient at any given time in the radiology unit.

MRI Prep

Jordan’s Saturday iPod Maneuver It’s back to the MRI this week. On Wednesday. The mood is mellower than usual. It’s not to say we worry less. We just cope better. Jordan went in for a “walk study” on Friday. They punctured electrodes into her muscles and asked her to walk on a treadmill for a bit. They want to see if she can avoid surgery on her legs. The jury is out.

Portrait in Knit Hat 3 In her confident gaze, I see all that is _right_ with the world. She doesn’t blame. She rises. She doesn’t regret. She hopes. The reason I laugh and cherish, imagine and float, is because of that spirit. It’s uniquely hers. Even when she is dour, that life is in her. It never surrenders and it never resigns to the pessimism of others. Her spirit is living.

Jordan’s Favorite Tea Cup I relish mornings. It’s prime writing time. Quiet, new, open. Even though I was up until nearly 2am last night, it didn’t stop me from rolling out of bed by 7 without any help of the alarm. Twenty minutes later and I was sipping coffee, clacking away on a new writing project. I got so absorbed in it I almost didn’t hear Jordan foraging through the pantry.