Stable

We got the results from the Slayer’s MRI yesterday. Overall, looks stable. One area might have some growth, but hard to say because it’s small. She’ll be back on chemo when her counts are stronger. She’s still a little low. She’s also coming back to CHLA for a few days so the neurology team can observe her in an effort to solve the issues with seizures and spasms. Jordan was upbeat.

Read more...

Hello, April

The sun showers her hair as she leans across the railing of our third floor patio. She rests her head on her hand, with an elbow braced against the iron, and rambles on about a playdate she plans with a new friend. She has quilted me with random observations and anecdotes for the past 20 minutes. Each patch of one-sided conversation is stitched to the next with an obligatory silence. She knows that I have come here to write.

Read more...

Jordan has taken to random acts of magnet art. We find these installations all over the house. She’s the Banksy of magnet art.

Chaotically Unpredictable

It’s a waste to chase the pipe dream of a magical tiny theory that allows us to make quick and detailed calculations about the future. We can’t predict and we can’t control. To accept this can be a source of liberation and inner peace. We’re part of the unfolding world, surfing the chaotic waves. – What is my name? She searches the hall with restless eyes. They find many targets but none are me.

Read more...