Thank you to everyone for the great encouragement and interest in Jordan’s test results. She is doing very well. The radiologist report showed that there is no change in the scans. She is in stable health. This is good news.

A groggy, and slightly cranky Jordan rests after the MRI It was a long, long day. For the most part, it went well. Jordan cooperated with the technicians for her MRI and she came to afterward with only minor fuss. She was groggy for the early part of the afternoon. Unfortunately, computer trouble at CHLA kept her doctor from having a look at the scans, and it is too early for the radiology report.

It’s been a frustrating day. As much as I love Children’s Hospital, and I do love them, they are a case study in dysfunctional operations. If not for the unbelievable talent of the doctors and nurses, I’d consider moving Jordan’s case somewhere else. But the doctors and nurses are fantastic and I can’t imagine trusting her care to anyone else. I took the day off to be with Jordan, but the hospital implemented a new policy that only one parent can be with the patient at any given time in the radiology unit.

MRI Prep

Jordan’s Saturday iPod Maneuver It’s back to the MRI this week. On Wednesday. The mood is mellower than usual. It’s not to say we worry less. We just cope better. Jordan went in for a “walk study” on Friday. They punctured electrodes into her muscles and asked her to walk on a treadmill for a bit. They want to see if she can avoid surgery on her legs. The jury is out.